Living with Parkinson’s
Family and friends
Being diagnosed with a long term condition like Parkinson’s can put a strain not only on those diagnosed with it, but also on wives, husbands, partners, family and friends.
Caring for someone with Parkinson’s
It can be difficult to talk to people about the condition, even if they are very close. Dealing with the deterioration of symptoms may cause frustration and depression.
Spouses, partners, family and friends will inevitably feel anxious and frustrated as well. It is important for the person with Parkinson’s to be open about their feelings and to let those around them know what they can do to help.
It is worth taking time to think about any specific needs and what would help achieve the best quality of life. For example, it may be worth considering exercise equipment or home adaptations.
It is important to remain positive as far as possible and to aim to live as comfortably and as well with Parkinson’s as possible.
Support
Parkinson’s Guernsey is ready to help and support those who care for a partner, friend or family member with Parkinson’s.
Parkinson’s Guernsey
Whether providing care and support for someone who has recently been diagnosed or someone who has been living with Parkinson’s for a while, Parkinson’s Guernsey has appropriate advice and information.
Please contact us at: info@parkinsons.org.gg
You are not on your own
All those affected by Parkinson’s should feel able to contact their GP or the Parkinson’s Clinical Nurse Specialist for help. It may also be helpful to talk to a trained counsellor or psychologist or someone at a specialist helpline.
Many people find it helpful to talk to others with Parkinson’s either one-to-one or at a group get-together or an exercise event such as those arranged by Parkinson’s Guernsey.
Want to support us?
If you would like to support Parkinson’s Guernsey in any way - as a volunteer, or a donor, or with ideas for improving the support we provide - please get in touch.
email: info@parkinsons.org.gg
Work and finances
Whether you are a person with Parkinson’s or you are caring for someone who has it, it is likely that you will be concerned about work, money, continuing to drive and other rights.
Work and finances
Being diagnosed with Parkinson’s does not mean having to stop working. Many people with the condition keep working for years after their diagnosis.
As the condition progresses, the symptoms of Parkinson’s can get worse, and it can become increasingly difficult to carry out everyday activities without help. Many people respond well to treatment and only experience mild to moderate disability, whereas the minority may not respond as well and can, in time, become more severely disabled.
Driving
Someone who has been diagnosed with Parkinson’s disease must inform the Traffic Committee and their insurance company.
Transport Service
Parkinson’s Guernsey has a wheelchair accessible vehicle and volunteer drivers available to take members to events and important appointments.
Please note this service is subject to availability.
Medical assessment
It may not be necessary to stop driving, but Parkinson’s is one of the medical conditions which must be notified to Driver and Vehicle Licensing. Once they have been informed, the person with Parkinson’s will usually be asked to submit a doctor’s report.